Kevin experienced renal failure at age 26 that turned his life upside down overnight. He talks about the experience of diagnosis, subsequent dialysis for two years and receiving a living donor transplant from a close friend.

Kevin’s desire to help the rare disease community, led to him becoming involved with the Alport Syndrome Foundation in 2014, taking on a full time role in 2019.

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Rarely Heard Season two is supported by Cambridge Healthcare Research and Alexion.