S1, E2. Hunter Syndrome: Motherhood, grief and loss
Geraldine Renton’s world changed forever in 2020, when her son Ethan passed away due to Hunter Syndrome. As chronicled in her award-winning blog, ‘It’s Me & Ethan’, and her debut novel, ‘Ethan & Me’, Geraldine and her family managed the rare disease for eighteen years, with a lot of love, laughter, and communication. She talks candidly about her life with and without Ethan in it, how writing has helped her and finding courage and a path forward in the midst of grief.If you enjoyed this podcast don’t forget to like, rate and subscribe so you never have to miss out!Rarely Heard is created in partnership between Beacon and Same But Different. Read Geraldine’s blog or buy her book hererarelyheard.orgRarely Heard is sponsored by Alexion, illumina, Cambridge Healthcare Research and Takeda and would not be possible without their support.