S2, E8. Primary Ciliary Dyskinesia: The power of partnerships in PCD and across the rare community

Rarely Heard

23-03-2023 • 0 seconds

Amanda Harris has been working with PCD for the past 14 years. She talks about her role in diagnostics, supporting the patient and family, and the power of building partnerships and taking lessons from the wider rare community.

Amanda is passionate about building strong and effective partnerships across the PCD community to ensure that patients receive the best and most coordinated care possible.

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Rarely Heard Season two is supported by Cambridge Healthcare Research and Alexion.