Shelley is mother to Noah, a teenager who was diagnosed with an inoperable brain tumour in June 2021. Nicole was diagnosed with NF1 as a toddler and is the inspiration behind the charity, Childhood Tumour Trust.
Shelley and Nicole spoke about the challenges of navigating the education system with a chronic illness, how harmful the description ‘benign’ can be to those living with a supposedly benign illness and how NF1 has impacted all of their family relationships.
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Rarely Heard Season two is supported by Cambridge Healthcare Research and Alexion.
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