For this episode of Karger’s The Waiting Room Podcast on Rare Disease Day 2023, which is held on February 28, we spoke with Lisa Sarfaty from the National Organization for Rare Disorders (NORD). Lisa currently serves as the Vice President of Community Engagement, and particularly focuses on advocacy, education, and capacity building.

While addressing the 40th anniversary of the Orphan Drug Act (ODA) and of the foundation of NORD as an organization, we specifically tried to answer the question: “What does equity mean for people living with a rare disease?” We also looked at what should be done to actually achieve this equity in education, the workplace, and everyday life. Last but not least, we had a closer look at NORD’s plans for Rare Disease Day 2023.

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