‘It was unbelievably painful - I probably used a few Anglo-Saxon words.’ Jon is at Peppa Pig World with his family when he notices something very unusual about his body.

In Room 5, Helena Merriman interviews people who - like her - were changed by a diagnosis.

Written, presented and produced by Helena Merriman Composer: Jeremy Warmsley Sound Design: Steve Bond

Additional research: Ruby Gregory Production Co-ordinator: Janet Staples Editor: Emma Rippon Commissioning Editor: Richard Knight

#Room5

End song: Miffed by Tom Rosenthal

If you have a story you’d like to share you can email: room5@bbc.co.uk