Breaking it down - A multiple sclerosis podcast

MS Trust

Breaking it down - A multiple sclerosis podcast by the MS Trust brings together a range of voices from the MS community to cover all aspects of life with multiple sclerosis. Featuring a combination of expert advice and real life experiences from people with MS, episodes provide an in-depth insight into the impact MS symptoms can have and how they can be most successfully managed. read less
Health & FitnessHealth & Fitness

Episodes

How periods, pregnancy, breastfeeding and the menopause can affect multiple sclerosis in women
1w ago
How periods, pregnancy, breastfeeding and the menopause can affect multiple sclerosis in women
Have you ever wondered how your hormones might affect your MS? We're joined by podcast guests Olivia Mason, a woman diagnosed with multiple sclerosis not long after giving birth, and Professor Ruth Dobson, a consultant neurologist specialising in MS.Together, we explore how periods, pregnancy, breastfeeding, and menopause can influence MS. Here's what we cover•      Can periods make MS symptoms worse?•      Is pregnancy protective for women with MS?•      Can you use disease modifying drugs (DMDs) whilst pregnant?•      Can women with MS safely breastfeed?•      How does menopause affect MS symptoms?•      Plus, Olivia shares her personal experience and insights on navigating an MS diagnosis as a new mother. This episode is a must-listen for anyone who wants to understand more about how periods, pregnancy, breastfeeding and the menopause can affect multiple sclerosis.Listen now for all of the latest information, tips and more!Episode notes- MS Trust  A-Z on MS and Hormones: mstrust.org.uk/a-z/hormones- MS Trust  A-Z on MS and pregnancy: mstrust.org.uk/search/pregnancy- MS Trust  A-Z on MS and breastfeeding: mstrust.org.uk/a-z/breastfeeding- MS Trust  A-Z on MS and menopause: mstrust.org.uk/search/menopause- MS Trust  Podcast on  MS and menopause: mstrust.org.uk/information-support/podcasts/how-does-menopause-affect-ms- Can the menopause affect MS - Research update: mstrust.org.uk/research/research-updates/update151013-menopause-MS-UK guidelines for treating multiple sclerosis symptoms during pregnancy - Research Update: mstrust.org.uk/news/research/230515-uk-guidelines-treating-multiple-sclerosis-symptoms-during-pregnancy- Why I created The Twelve Day Marathon - Blog by Olivia on MS Trust website: mstrust.org.uk/news/stories/why-i-created-twelve-day-marathon- UK MS pregnancy Register: ukmsregister.org/pregnancy
Your most asked multiple sclerosis questions in 2023
18-12-2023
Your most asked multiple sclerosis questions in 2023
What have the MS community been asking about this year? We interview Corinne from our helpline team who tackles the burning MS questions and trends that our service has encountered in 2023.  In our busiest helpline year yet, the range of questions has been vast! We cover symptoms, equipment and a whole lot more. Plus, Dr Claire Winchester joins us for a fun experiment! We put forward your questions to an AI chatbot to see if it could be a useful source of MS information. Dive in to see if it has same level of expertise as our helpline service. Listen now for tips, helpful information and more.Episode NotesMS Trust HelplineSupporting the MS Trust - information from the MS TrustMS Trust Facebook Groupmstrust.org.uk/a-z/fatigue - MS Trust information about fatiguemstrust.org.uk/a-z/pain - MS Trust information about painmstrust.org.uk/information-support/newly-diagnosed - MS Trust information for the newly diagnosedmstrust.org.uk/information-support/work-money-legal/working-life  - MS Trust information about work and MSmstrust.org.uk/information-support/home-and-travel/equipment -  MS Trust information about equipment mstrust.org.uk/a-z/altered-sensations  -  MS Trust information about altered sensations mstrust.org.uk/a-z/magnetic-resonance-imaging-mri - MS Trust information about MRI'smstrust.org.uk/news/focus-fact-or-fiction - MS Trust new item about on to work out if an information source is reliable or not multiplesclerosisnewstoday.com/news-posts/2023/11/27/ news item from Multiple Sclerosis news about  AI's helping out reading MRI scans.
What you told us about MS and mental health
04-09-2023
What you told us about MS and mental health
This is a recording from a live stream we did earlier with the Head of Information and Engagement at the MS Trust Claire Winchester, we chat to her about a report called “Life changing: mental health and MS". In this report we find out about what the MS community in the UK has to say about mental with and Multiple Sclerosis. Episode notesRead the full report, Life changing: mental health and MS: shop.mstrust.org.uk/publications/life-changing-mental-health-and-ms/Depression and MS - info from the MS Trust:  mstrust.org.uk/a-z/depression Anxiety and MS - info from the MS Trust:  mstrust.org.uk/a-z/anxiety Life changing: mental health and MS - news from MS Trust mstrust.org.uk/news/life-changing-mental-health-and-ms Ask the expert: Mental health and MS - info from MS Trust mstrust.org.uk/news/expert/ask-expert-mental-health-and-msFive top tips to help health professionals look after their mental health - blog from MS Trust mstrust.org.uk/news/views-and-comments/five-top-tips-help-health-professionals-look-after-their-mental-health It's all in your head: Mental health and MS - podcast from MS Trust mstrust.org.uk/information-support/podcasts/mental-health-and-msMS: your emotions and feelings - live podcast from MS Trust mstrust.org.uk/information-support/podcasts/ms-your-emotions-and-feelings-liveGetting to grips with using a mobility aid - podcast from MS Trustmstrust.org.uk/information-support/podcasts/getting-grips-using-mobility-aid MS and your feelings- publication from the MS Trust shop.mstrust.org.uk/publications/ms-and-your-feelings/
Small steps, big impact: building a healthier lifestyle with MS
01-06-2023
Small steps, big impact: building a healthier lifestyle with MS
So you want to lead a healthier lifestyle with MS? But, you're feeling overwhelmed and you're not sure where to start? We've been there. Can simple changes in sleep, exercise, and diet REALLY influence MS management?Special guest Charlie Peel, author of ‘Disease-modifying lifestyle in multiple sclerosis: evidence, challenges, and the importance of engaged, informed patients,’ gives us her take on the small steps that can make a massive difference to you. Learn practical strategies for positive lifestyle changes today!Plus listen to our colleague Stephen’s MS journey. You’ll hear about how the exercise challenge ‘Miles for MS’ changed his life, why he’s now organising it and how you can get involved! Oh, and the best part? This challenge is truly accessible to everyone in the MS community!Listen now to discover the power of setting goals, staying active and living well with MS.Show notesMiles for MS - Find out how you can get involved https://mstrust.org.uk/event/miles-msExercise and MS  - Information from the MS Trust: mstrust.org.uk/information-support/exercise-msDiet and MS  -  Information from the MS Trust: mstrust.org.uk/information-support/diet-msLifestyle Choices  - Information from the MS Trust: mstrust.org.uk/information-support/wellbeing-ms/lifestyle-choicesSleep and MS  - Information from the MS Trust: mstrust.org.uk/information-support/wellbeing-ms/sleepExercise is good for your brain  -  research update from the MS Trust: mstrust.org.uk/research/research-updates/210203-exercise-good-brainBeeWellWithMS Podcast with Dr Agne Straukiene - https://www.spreaker.com/user/12181923
MS awareness week special
27-04-2023
MS awareness week special
In this episode, we are doing an MS awareness week special. This year the campaign looked at how MS affects everybody differently and encouraged people to share their experiences using the hashtag #MSMakesMe. Helena and Erika, from our fundraising team, catch up on what has happened throughout the week, as well as some exciting things that are happening in the next few months for the MS Trust.  Want to join the conversation? Listen now to find out how you can get involved and make your voice heard.Episode notes- MS Awareness week: mstrust.org.uk/MSAW- Live stream - MS: Your emotions and feelings: mstrust.org.uk/get-involved/ms-awareness-week#register- MS and mindfulness with Justin Standfield - YouTube - How does MS Make you feel?:  mstrust.org.uk/news/how-does-ms-make-you-feel- Miles for MS: mstrust.org.uk/event/miles-ms- Host a Thirtea party: mstrust.org.uk/party- Volenteer with the MS Trust - mstrust.org.uk/get-involved/volunteering- MS Trust contact us:  mstrust.org.uk/what-we-do/contact-usOur MS Trust  Enquiry Service helpline is available from Monday to Friday (except UK bank holidays) from 9am to 5pm. Outside these hours you can leave us a message and we'll get back to you as soon as we can. Call our Enquiry Service on 0800 032 38 39 or you can email us ask@mstrust.org.uk. It’s available to anyone who wants to know more about MS, not just those currently living with the condition. To contact our fundraising team email fundraising@mstrust.org.uk or call the fundraising team on 01462 476707.
Worried you have Multiple Sclerosis?
05-04-2023
Worried you have Multiple Sclerosis?
It’s estimated that 130,000 people in the UK have multiple sclerosis. Every week around 130 more people are diagnosed. Are you worried that your symptoms might be MS? Have you looked MS up on the internet and read about symptoms that sound like the ones you’re experiencing? Or perhaps someone in your family may have MS and you are concerned that you may also get it.In this podcast, we chat about what you should do if you are worried that you might have MS, as well as what your next steps could be. Although don’t turn off if you already have a diagnosis, as we’re also sharing an interesting personal story from Dr Daniel Matterson, better known as @the.ms.doctor on Instagram. He chats to us about his diagnosis and shares some tips about what you can do if you are worried you have MS. Episode notes- Worried you have MS?: mstrust.org.uk//information-support/ms-symptoms-diagnosis/worried-you-have-ms- MS Trust what is MS?: mstrust.org.uk/about-ms/what-ms- MS trust how is MS diagnosed?: mstrust.org.uk/about-ms/what-ms/how-ms-diagnosed- MS Trust newly diagnosed: mstrust.org.uk/about-ms/newly-diagnosed- MS Trust  A-Z of MS : mstrust.org.uk/a-z- MS Trust contact us:  mstrust.org.uk/what-we-do/contact-us- MS Awareness week webinars: mstrust.org.uk/MSAW- Diagnosing MS - Lumbar puncture video: youtube.com/watch?v=dGmZt6XmZAQ- Diagnosing MS - Evoked potentials tests video: youtube.com/watch?v=DttdmivruP4- Diagnosing MS - MRI scan video youtube.com/watch?v=Erz_nGg4iII- Dr. Daniel Matterson Instagram: instagram.com/the.ms.doctorOur MS Trust  Enquiry Service helpline is available from Monday to Friday (except UK bank holidays) from 9am to 5pm. Outside these hours you can leave us a message and we'll get back to you as soon as we can. Call our Enquiry Service on 0800 032 38 39 or you can email us ask@mstrust.org.uk. It’s available to anyone who wants to know more about MS, not just those currently living with the condition.