Breaking it down - A multiple sclerosis podcast

MS Trust

Our podcast brings together a range of voices from the MS community to cover all aspects of life with multiple sclerosis. We know that living with MS can be life changing and can feel overwhelming at times. That’s why we’re here with you at each stage of the journey.

Look, we know that we don’t have all the answers. But our podcast’s aim is to bring you the most up to date, trusted information from experts across the MS space including neurologists, therapists and researchers.

Plus, hosts Helena and Nick hear real-life experiences from the MS community and find out your tips, tricks and the things that make you tick. We pose your burning questions to our experts and find out the information that you really want to know.

Listen now for helpful information on symptoms, treatments, updates and a whole lot more.

read less
Health & FitnessHealth & Fitness

Episodes

Your most asked MS questions in 2024
5d ago
Your most asked MS questions in 2024
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39What questions have the MS community been asking in 2024? We took to social media and analysed our helpline enquiries to find out.Dr Claire Winchester and Corinne from our helpline team take us through the topics and explore the available information, support and self-management strategies.Plus, we cover some of the more unusual things that you’ve been asking about, like tattoos, Botox and lip fillers. Ready to find out more?Listen now for trusted information, tips and more.Show NotesMS Trust HelplineMS Trust Shop - Here you can download all MS Trust publications for freeSupporting the MS Trust - information from the MS TrustMS Trust Facebook Groupmstrust.org.uk/a-z/fatigue - MS Trust information about fatiguemstrust.org.uk/information-support/newly-diagnosed - MS Trust information for the newly diagnosedmstrust.org.uk/information-support/work-money-legal/working-life  - MS Trust information about work and MSmstrust.org.uk/information-support/home-and-travel/equipment -  MS Trust information about equipmentmstrust.org.uk/a-z/botulinum-toxin-botox   MS Trust information about botoxmstrust.org.uk/a-z/mcdonald-criteria MS Trust information about about the McDonald's Criteriamstrust.org.uk/news/think-you-know-how-spot-uti - Think you can spot an UTI - info from the MS TrustCall our free helpline on 0800 032 38 39 for practical information you can trust. Or email ask@mstrust.org.uk. We're here weekdays from 10am to 4pm, except bank holidays.
Travelling with MS:  we talk public transport challenges and solutions
18-11-2024
Travelling with MS: we talk public transport challenges and solutions
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Is public transport derailing your life? We caught up with Meg Barnett (Transport For All), Flora (MS Trust helpline), Richard Sprenger and Antoinette Mohamed on public transport tips, helpful information and all the latest resources. “It’s just really complicated. I hate having medical appointments because it’s so difficult to get to them.” - Antoinette Does this sound familiar? If public transport is derailing your life, you’re not alone.Between all of the planning, symptom management, inaccessible stations and social interactions, public transport can feel like you’ve got a one-way ticket to exhaustion on the fatigue express. In fact, 77% of people in our study reported feelings of isolation due to barriers in transport and travel. That’s why we caught up with Meg Barnett from the charity Transport For All, Flora from the MS Trust helpline team, MS Trust Ambassador Richard Sprenger and regular MS Trust blogger Antoinette Mohamed. Our podcast guests talk us through their public transport wins and the inevitable disaster journeys. Plus, we hear about helpful apps, journey planning tips and where to turn to when our travels go severely off-track. Whilst we know that we can’t wave a magic wand and fix public transport for the MS community, this episode might just give you a little more confidence the next time you’re setting sail on an adventure. Listen now for all of the latest trusted information and tips.Episode NotesDriving and Transport - info from MS Trustmstrust.org.uk/information-support/home-and-travel/driving-and-public-transport Life changing: getting around with MS - information from MS Trust  mstrust.org.uk/news/life-changing-getting-around-ms Transport for All - www.transportforall.org.ukPassenger Assistance - passengerassistance.comCitymapper - travel planner app - citymapper.com/?lang=enMS Trust Facebook Group
Bringing MS to work: conversations, challenges, and vocational rehab
14-10-2024
Bringing MS to work: conversations, challenges, and vocational rehab
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Are you wondering how to stay productive while managing MS? Perhaps you are looking for ways to disclose your diagnosis without derailing your career?  Then join us as we delve into the topic of MS at work.Hosts Nick and Helena explore the impact of Multiple Sclerosis in the workplace and share strategies for Bringing Your MS to Work.We have a jam-packed show with four fantastic guests:Dr. Blanca de Dios Pérez, a postdoctoral Research Fellow at the University of Nottingham, who shares her research aimed at helping people with MS stay in the workforce for as long as they choose with the help of vocational rehab.Amy and Sam from the charity “MS Together” discuss their personal journeys with MS in the workplace and the supportive conversations they have been having within their community.Jane, recently diagnosed with MS, shares  her experience of revealing her diagnosis at work,Tune in to hear these stories and get some ideas in managing MS in your  workplace. Let’s bring your MS to work!Episode NotesMS Trust web page on Working life with MS: mstrust.org.uk/life-ms/your-finances/working-lifeBring your MS To work Campaign mstrust.org.uk/get-involved/bring-your-ms-work - Fundraising Campaign from MS TrustMS Together mstogether.org/ - MS charity for young people with MSVolunteer at the MS Trust mstrust.org.uk/get-involved/volunteeringWorking life and MS mstrust.org.uk/information-support/podcasts/working-life-and-ms - Podcast episode about MS and your rights at work Other work resources that might be usefulMS Awareness Week webinar on work and MS: mstrust.org.uk/get-involved/ms-awareness-week/work-and-ms-webinar MS Trust web page on Working life with MS: mstrust.org.uk/life-ms/your-finances/working-life MS Trust web page on Legal advice: mstrust.org.uk/life-ms/your-finances/legal-adviceMS Trust A-Z Equality Act:  mstrust.org.uk/a-z/equality-actLaw Centres offer legal advice, casework and representation:  lawcentres.org.ukCitizens Advice: citizensadvice.org.uk/work/rights-at-workAccess to work: gov.uk/access-to-work/applyAcas gives employees and employers free, impartial advice on workplace rights, rules and best practice: acas.org.uk/
Demystifying MS diets pt 2: What is a healthy MS diet?
08-07-2024
Demystifying MS diets pt 2: What is a healthy MS diet?
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39What should you eat when you live with MS? We come across this question a lot from the MS community. It’s not surprising considering how much conflicting information there is out there.That’s why we’re demystifying MS diets in our two-part podcast special. Episode one saw us catch up with Dr. Terry Wahls and Samantha Josephs (Overcoming MS) about their respective diets and lifestyle approaches.This time around, we’re chewing the fat with registered dietician Claire Fenlon (Chilterns Neuro Centre), who also lives with MS herself. She helps us to understand the importance of healthy eating with MS and outlines some helpful tips.Also, MS Trust Head of Information and Engagement, Dr Claire Winchester, gives us food for thought on the research behind nutrition and diet.Join us for all the latest tips, information and more!Episode notesDemystifying MS diets pt 1: the Wahls Protocol and Overcoming MS: mstrust.org.uk/information-support/podcasts/demystifying-ms-diets-pt-1-wahls-protocol-and-overcoming-msDiet and MS - info from MS Trust  mstrust.org.uk/information-support/diet-msTypes of MS Diets – info from MS Trust mstrust.org.uk/information-support/diet-ms/types-dietDiet and symptoms – info from MS Trust mstrust.org.uk/information-support/diet-ms/diet-and-symptomsDonate to the MS Trust donate.mstrust.org.uk/Tips to keep your bladder healthy mstrust.org.uk/news/expert/tips-keeping-your-bladder-healthy Tips to keep your bowel healthy mstrust.org.uk/news/expert/tips-keeping-your-bowel-healthyChilterns Neuro centre chilternsneurocentre.org
Demystifying MS diets pt 1: the Wahls Protocol and Overcoming MS
01-07-2024
Demystifying MS diets pt 1: the Wahls Protocol and Overcoming MS
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Have you thought about making changes to your diet to help manage your MS? Maybe you’ve experimented with a few fad diets, but never quite found what works.Well, we know the feeling. The world of nutrition can be tricky – you’re not sure if you should be keto, vegan, paleo, carnivore or just straight up confuddled.Throw MS into the mix and all of a sudden, things can get even more confusing. That’s why we’re sinking our teeth into the world of MS and diet and digesting the facts in a two-part podcast series.First up, we tuck in to two of the most popular MS diets: The Wahls Protocol and the Overcoming MS diet and lifestyle.Our guests, Dr. Terry Wahls (The Wahls Protocol) and Samantha Josephs (Overcoming MS), discuss their diets, the research behind them and how healthy eating patterns can support your overall health.Listen now for all the latest tips, information and more!Episode notesDiet and MS - info from MS Trust  mstrust.org.uk/information-support/diet-msTypes of MS Diets – info from MS Trust mstrust.org.uk/information-support/diet-ms/types-dietDiet and symptoms – info from MS Trust mstrust.org.uk/information-support/diet-ms/diet-and-symptomsDonate to the MS Trust donate.mstrust.org.uk/The Wahls protocol terrywahls.com/the-wahls-protocol/Overcoming MS Diet overcomingms.org/program/guide-overcoming-ms-diet/
Young carers in MS – Oritsé Williams' story
10-06-2024
Young carers in MS – Oritsé Williams' story
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39JLS founding member and critically acclaimed solo artist Oritsé Williams has been in the limelight since 2008. But long before the dazzling, bright lights of fame, Oritsé began his journey as a young carer for his mum, who was diagnosed with MS when he was 12 years old.Find out about the challenges that he and his siblings faced, his mother’s MS journey and why he’s passionate about supporting other young carers out there.Listen now to hear his take on caring for someone with dignity and love, the family bond they developed and how finding a creative outlet supported him emotionally.Episode notesInformation for carers - information from the MS Trust - mstrust.org.uk/information-support/care-and-carers/information-for-carers Caring for someone with MS - Podcast from MS Trust - mstrust.org.uk/information-support/podcasts/caring-someone-ms Advance care planning - information from the MS Trust - mstrust.org.uk/a-z/advance-care-planningThe MS Trust announce Oritsé Williams as its new celebrity ambassador -mstrust.org.uk/news/ms-trust-announce-oritse-williams-its-new-celebrity-ambassadorCaring organisations for young carershttps://www.mytimeyoungcarers.org/ - MYTIME Young Carers https://www.childrenssociety.org.uk/what-we-do/our-work/supporting-young-carers/ - Children's societyhttps://carers.org/about-caring/about-young-adult-carers - Carers UK
Limbo land - what you can do while you wait for an MS diagnosis
28-05-2024
Limbo land - what you can do while you wait for an MS diagnosis
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Waiting for a potential multiple sclerosis diagnosis can be daunting. In this episode, we explore the "limbo land" time during your first appointments and a possible MS diagnosis.Neurologist, Dr Emma Tallantyre, joins us to talk about the importance of reaching out to your healthcare professionals, managing stress and more!We discuss the roles of neurologists and the tests you might go through. Plus, we cover some top tips for preparing for each appointment and what to do next.Listeners will gain a deeper understanding of the diagnostic journey, treatments, and the value of support from healthcare professionals, family, and friends.Listen now for expert advice, personal stories, and community support.Show notes- Worried you have MS?: mstrust.org.uk//information-support/ms-symptoms-diagnosis/worried-you-have-ms- MS Trust what is MS?: mstrust.org.uk/about-ms/what-ms- MS trust how is MS diagnosed?: mstrust.org.uk/about-ms/what-ms/how-ms-diagnosed- MS Trust newly diagnosed: mstrust.org.uk/about-ms/newly-diagnosed- MS Trust  A-Z of MS : mstrust.org.uk/a-z- MS Trust questions to ask a health professionals:  mstrust.org.uk/a-z/questions-ask-health-professionals - MS Trust contact us:  mstrust.org.uk/what-we-do/contact-us- Diagnosing MS - Lumbar puncture video: youtube.com/watch?v=dGmZt6XmZAQ- Diagnosing MS - Evoked potentials tests video: youtube.com/watch?v=DttdmivruP4- Diagnosing MS - MRI scan video youtube.com/watch?v=Erz_nGg4iII
MS Unfiltered: tackling taboo symptoms
22-04-2024
MS Unfiltered: tackling taboo symptoms
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Do you have feel embarrassed about your MS symptoms? Do you find some topics difficult to talk about? You’re not the only one. 85% of people we surveyed felt embarrassed by at least one of their symptoms and many of the community were hiding their symptoms from their partners. A third of people living with MS also avoided seeking medical help due to embarrassment. It’s time to shatter the stigma. MS Trust ambassadors, Trishna Bharadia, Dr Agne Straukiene and Richard Sprenger tackle taboo subjects like sexual dysfunction, bladder and bowel issues, drugs and opening up to your employer.Listen now for honest experiences, tips and more.Show NotesMS Awareness Week 2024mstrust.org.uk/get-involved/ms-awareness-weekWorking life and MS mstrust.org.uk/information-support/work-money-legal/working-lifeEquality actmstrust.org.uk/a-z/equality-actSexual problems for men with MSmstrust.org.uk/a-z/sexual-problems-men-msSexual problems for women with MSmstrust.org.uk/a-z/sexual-problems-women-msBladder and Bowel problemsmstrust.org.uk/a-z/bladder-and-bowel-problemsPodcastsHow can I manage my MS bowel problems?mstrust.org.uk/information-support/podcasts/how-can-i-manage-my-ms-bowel-problemsHow can I manage my MS bladder problems?mstrust.org.uk/information-support/podcasts/how-can-i-manage-my-ms-bladder-problemsTalking toilet troubles in MSmstrust.org.uk/information-support/podcasts/talking-toilet-troubles-msCognition and thinking problems in MSmstrust.org.uk/information-support/podcasts/cognition-and-thinking-problems-msSex and MS part 1 (women)mstrust.org.uk/information-support/podcasts/sex-and-ms-part-1-womenSex and MS part 2 (men)mstrust.org.uk/information-support/podcasts/sex-and-ms-part-2-menRelationships and MSmstrust.org.uk/information-support/podcasts/relationships-and-msWorking life and MSmstrust.org.uk/information-support/podcasts/working-life-and-ms
How periods, pregnancy, breastfeeding and the menopause can affect multiple sclerosis in women
08-04-2024
How periods, pregnancy, breastfeeding and the menopause can affect multiple sclerosis in women
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Have you ever wondered how your hormones might affect your MS? We're joined by podcast guests Olivia Mason, a woman diagnosed with multiple sclerosis not long after giving birth, and Professor Ruth Dobson, a consultant neurologist specialising in MS.Together, we explore how periods, pregnancy, breastfeeding, and menopause can influence MS. Here's what we cover•      Can periods make MS symptoms worse?•      Is pregnancy protective for women with MS?•      Can you use disease modifying drugs (DMDs) whilst pregnant?•      Can women with MS safely breastfeed?•      How does menopause affect MS symptoms?•      Plus, Olivia shares her personal experience and insights on navigating an MS diagnosis as a new mother. This episode is a must-listen for anyone who wants to understand more about how periods, pregnancy, breastfeeding and the menopause can affect multiple sclerosis.Listen now for all of the latest information, tips and more!Episode notes- MS Trust  A-Z on MS and Hormones: mstrust.org.uk/a-z/hormones- MS Trust  A-Z on MS and pregnancy: mstrust.org.uk/search/pregnancy- MS Trust  A-Z on MS and breastfeeding: mstrust.org.uk/a-z/breastfeeding- MS Trust  A-Z on MS and menopause: mstrust.org.uk/search/menopause- MS Trust  Podcast on  MS and menopause: mstrust.org.uk/information-support/podcasts/how-does-menopause-affect-ms- Can the menopause affect MS - Research update: mstrust.org.uk/research/research-updates/update151013-menopause-MS-UK guidelines for treating multiple sclerosis symptoms during pregnancy - Research Update: mstrust.org.uk/news/research/230515-uk-guidelines-treating-multiple-sclerosis-symptoms-during-pregnancy- Why I created The Twelve Day Marathon - Blog by Olivia on MS Trust website: mstrust.org.uk/news/stories/why-i-created-twelve-day-marathon- UK MS pregnancy Register: ukmsregister.org/pregnancy
Your most asked multiple sclerosis questions in 2023
18-12-2023
Your most asked multiple sclerosis questions in 2023
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39What have the MS community been asking about this year? We interview Corinne from our helpline team who tackles the burning MS questions and trends that our service has encountered in 2023.  In our busiest helpline year yet, the range of questions has been vast! We cover symptoms, equipment and a whole lot more. Plus, Dr Claire Winchester joins us for a fun experiment! We put forward your questions to an AI chatbot to see if it could be a useful source of MS information. Dive in to see if it has same level of expertise as our helpline service. Listen now for tips, helpful information and more.Episode NotesMS Trust HelplineSupporting the MS Trust - information from the MS TrustMS Trust Facebook Groupmstrust.org.uk/a-z/fatigue - MS Trust information about fatiguemstrust.org.uk/a-z/pain - MS Trust information about painmstrust.org.uk/information-support/newly-diagnosed - MS Trust information for the newly diagnosedmstrust.org.uk/information-support/work-money-legal/working-life  - MS Trust information about work and MSmstrust.org.uk/information-support/home-and-travel/equipment -  MS Trust information about equipment mstrust.org.uk/a-z/altered-sensations  -  MS Trust information about altered sensations mstrust.org.uk/a-z/magnetic-resonance-imaging-mri - MS Trust information about MRI'smstrust.org.uk/news/focus-fact-or-fiction - MS Trust new item about on to work out if an information source is reliable or not multiplesclerosisnewstoday.com/news-posts/2023/11/27/ news item from Multiple Sclerosis news about  AI's helping out reading MRI scans.