Prof Rachel Crowley is a consultant endocrinologist at St. Vincent’s University Hospital and University College Dublin School of Medicine. Her research typically focuses on rare bone disorders. Prof Crowley leads the recently awarded rare disease clinical trial network (RD-CTN), a HRB research network to enhance rare disease care and outcomes. Public and patient involvement is growing rapidly in the rare disease space and PPI is an integral part of the RD-CTN.
In our last episode of the series, Rachel speaks to Dr. Emma Dorris, programme manager for the PPI Ignite Network @ UCD, about how she started out with PPI and how she is growing PPI in the clinical trial space for rare diseases. She gives some excellent advice for clinical colleagues just starting out with PPI.
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