On Day Three of the EULAR Congress in Vienna, we have a bumper episode for you as the podcast series becomes a talking point of the conference! In this episode, you will hear from: Raquel Vaz, Scientific Project Leader at IFPAPaul Studenic, Researcher and Rheumatologist at Medical University of ViennaRebecca Beesley, Volunteer at Juvenile Arthritis Research (JAR Project)Souzi Makri, Past Chair of EULAR PARE and Vice President of the Cyprus League for People with RheumatismKaty Antonopoulou, PARE Committee Member and President of Sjogren’s Europe You can find us all week at Booth O22. Join us and share your great work to be part of this special podcast series recorded live and on location in Vienna. For more information about the Good Care for PsA project: See here. Follow the HOST: Instagram: https://instagram.com/joelvsarthritis   Facebook: https://www.facebook.com/joelvsarthritis   Twitter/X: https://twitter.com/joelvsarthritis  Twitch: https://twitch.tv/joelvsarthritis  TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX  All Links: https://linktr.ee/Joelvsarthritis  DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

We are putting the patient voice into the EULAR conversation on Day 2 of the Congress as we are joined by Andreas Dam, developer of the RheumaBuddy app, and award-winning patient advocate and Chair-elect of the EULAR PARE Committee, Dr. Simon Stones. You can find us all week at Booth O22. Join us and share your great work to be part of this special podcast series recorded live and on location in Vienna. For more information about the Good Care for PsA project: See here. Follow the HOST: Instagram: https://instagram.com/joelvsarthritis   Facebook: https://www.facebook.com/joelvsarthritis   Twitter/X: https://twitter.com/joelvsarthritis  Twitch: https://twitch.tv/joelvsarthritis  TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX  All Links: https://linktr.ee/Joelvsarthritis  DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

As we record LIVE from EULAR 2024 on IFPA’s booth to raise awareness of psoriatic disease and the Good Care for PsA project, we speak to some brilliant guests as the Congress heats up. In this episode, you will hear from Ingvar Ingvarsson, Vice President of IFPA, Zoë Clark, Programme Manager at NASS, and Loreto Carmona, Rheumatologist, Epidemiologist, and EULAR Advocacy Chair. We talk about their hopes, plans, and work at Europe’s largest Rheumatology gathering. You can find us all week at Booth O22. Join us and share your great work to be part of this special podcast series recorded live and on location in Vienna. For more information about the Good Care for PsA project: See here. Follow the HOST: Instagram: https://instagram.com/joelvsarthritis   Facebook: https://www.facebook.com/joelvsarthritis   Twitter/X: https://twitter.com/joelvsarthritis  Twitch: https://twitch.tv/joelvsarthritis  TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX  All Links: https://linktr.ee/Joelvsarthritis  DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

Hidradenitis Suppurativa (HS) affects countless individuals, causing painful abscesses and scarring and impacting every aspect of life. Yet, it often remains shrouded in silence and misunderstanding. Join us for a powerful conversation with Barry McGrath, co-founder of HS Ireland, patient advocate, and former scientific clinical researcher, as we shine a light on this chronic condition. Barry discusses his own experience with HS and the challenges faced by people with the condition. He also provides advice for people who are newly diagnosed with Hidradenitis Suppurativa, including finding a good medical team, joining a patient support group, and advocating for themselves. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our awareness work. Follow our GUEST:  Website: http://hsireland.ie  Instagram: https://www.instagram.com/hs_ireland  Twitter: https://twitter.com/hsireland1   LinkedIn: https://www.linkedin.com/company/hs-ireland  YouTube: https://www.youtube.com/@HSIreland  Follow the HOST: Instagram: https://instagram.com/joelvsarthritis   Facebook: https://www.facebook.com/joelvsarthritis   Twitter/X: https://twitter.com/joelvsarthritis  Twitch: https://twitch.tv/joelvsarthritis  TikTok: https://www.tiktok.com/@joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX  All Links: https://linktr.ee/Joelvsarthritis  DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

For Lupus Awareness Month in May, we are joined by Melissa Chieza, an occupational therapist and mental health practitioner who has been living with Type 1 Diabetes and Lupus since she was a child. In the episode, Melissa discusses her experiences living with Lupus and Type 1 Diabetes since she was a child. She talks about the challenges of managing both conditions, including the emotional toll and the importance of self-care. Melissa also offers advice to others who are living with chronic illnesses, such as finding a support system, advocating for yourself, and learning to say no. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  Instagram: https://instagram.com/melcee97  Twitter/X: https://twitter.com/@mel_chieza  Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

In this brief unscripted update, we bring the exciting news that the Podcast is heading out this summer—and its first stop is the EULAR Congress in Vienna! Keep an ear out for a special mini-series recorded live at the conference in June and for more announcements about other stops and countries on the tour soon! If you enjoy this podcast, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this Podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.

Chery Crow has amassed tens of thousands of followers on social media through her informative and energetic videos. She hosts the hugely popular 'Arthritis Life' podcast and website, where she works towards her vision of a world where every patient feels empowered and equipped to participate in meaningful daily activities with more confidence. Cheryl also shares her Rheumatoid Arthritis story, what made her take to social media to share it, and why she founded the popular 'Rheum to Thrive' self-management and support programs. Finally, we touch upon Acceptance and Commitment Therapy and why acceptance is not a bad word. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  Instagram: https://www.instagram.com/arthritis_life_cheryl/  TikTok: https://www.tiktok.com/@arthritislife  Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

Please note that this show contains the following TRIGGER WARNINGS: Suicide, Grief, and Depression - please consider this when deciding how and where you listen. In this show, my long-time friend, Ben Veal, founder and director of Second Mountain Comms, shares his personal experiences with anxiety and depression and how he managed his mental health during the COVID-19 pandemic. We'll talk about the recent loss of his father and the impact it's had on Ben's self-identity journey. As fathers, we'll discuss the challenges of raising children today and how Ben is trying to improve his relationships and find purpose in his life, particularly with his work. Whether you're struggling with your mental health, navigating grief, or figuring out who you are and what you want from life, we hope you'll find something to relate to in this show. If anything in this episode affected you and you need support, you can find it local to you here: https://findahelpline.com/ If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  Instagram: https://instagram.com/secondmountaincomms TikTok: https://www.tiktok.com/@secondmountaincomms LinkedIn: https://www.linkedin.com/company/secondmountaincomms Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

On World Parkinson's Day, join us for a poignant and inspiring conversation with Dr. George Ackerman, a passionate advocate for Parkinson's disease and dementia awareness. Driven by the memory of his mother, Sharon, who bravely battled the disease, Dr. Ackerman has dedicated his life to raising awareness, furthering research, and offering hope to millions impacted by Parkinson's. Hear Dr. Ackerman share his mother's journey with Parkinson's, the profound impact she had on his life, and his work, including his organisation, "Together for Sharon," and how it's making a difference in the lives of patients and their families. This is more than just a talk show; it's a platform for inspiration, action, and hope. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  Instagram: https://www.instagram.com/togetherforsharon/ YouTube: https://www.youtube.com/channel/UCIeBLOelhaLQNvgeNMzu-5g Twitter/X: https://twitter.com/togetherforsha1  Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

Osteoarthritis (OA) doesn't discriminate. It can affect people of all ages, including young adults and even children. In this episode, we talk to Rebecca Kudyk, who was diagnosed with severe Osteoarthritis at the age of 25. Rebecca shares her story of living with OA and how she has managed to not only maintain a high-profile job and young family, but thrive. In this episode, you will learn:  How OA can affect people of all agesThe challenges of living with OA and other comorbiditiesHow to stay positive and find ways to manage pain, fatigue and familyRebecca's tips for managing OA and maintaining a high-functioning lifestyle If you or someone you know is living with OA, this episode is for you. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  Instagram: https://instagram.com/chronically_bex Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

In this episode, we ask what role gender plays in delays to diagnosis. We are incredibly fortunate to be joined by Professor Yeliz Prior, Professor of Clinical Rehabilitation at the University of Salford, who lives with axial spondyloarthritis (axSpA) and osteoarthritis. Alongside exploring her personal lived experience journey and the great work she does as a prominent figure in the Rheumatology community, we discuss diagnostic delay and how gender and different patterns of clinical presentation across them can impact this. Listen now to what was, at the time of recording, our most-watched live show ever - and for good reason! If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  Twitter: @ProfYelizPrior Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon by Gideon Murray

Ahead of Rare Disease Day, we welcome Rachel Rimmer and Mark Telkman from Rare Autoinflammatory Conditions Community UK (RACC-UK) to illuminate the often-overlooked world of these chronic illnesses and how they differ from autoimmune diseases. RACC-UK is a UK-based charity supporting individuals living with rare autoinflammatory conditions, their families, and carers. They work tirelessly to improve their lives through information, support, advocacy, working alongside healthcare professionals and informing policy. Discover how RACC-UK creates a lifeline for patients facing isolation and empowers them to become active participants in their healthcare. Learn about their valuable resources and initiatives that make a real difference in the lives of those living with autoinflammatory conditions. Join us as Rachel shares her poignant diagnosis journey in the search for answers. Despite symptoms from birth, it took over a decade for her to be diagnosed with Mevalonate Kinase Deficiency (MKD). We learn about this experience and how it led to advocacy and becoming the Director of RACC-UK. This conversation is more than just a medical exploration; it's a call to action. We'll discuss the challenges of raising awareness, receiving a timely diagnosis, and ensuring a better future for all affected by these complex conditions. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  Instagram: https://instagram.com/@racc_uk Website: https://raccuk.com/ Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.

We are incredibly fortunate to be joined by not only Ass. Prof. Dr. Rachel Sommer, Head of People-Centered Health Care Research and Psychodermatology at University Medical Center Hamburg-Eppendorf, but a surprise guest in leading Dermatologist Prof. Dr. Matthias Augustin, Director of the Institute for Health Services Research in Dermatology and Nursing of the same institution who discuss the vitally important work they both do in people-centered healthcare. Person-centered healthcare (PCHC) is a holistic approach to healthcare that puts the patient's needs and preferences at the centre of care.  In PCHC, the patient is seen as an active partner in their own healthcare, involved in all aspects of their care, from setting goals to making decisions about their treatment. This approach has been shown to provide improved patient outcomes and quality of life. We will explore the relevance of PCHC, especially in the context of mental health and dermatological conditions, discuss the benefits, how to implement it in practice, and current projects related to PCHC in dermatology. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.

In this final episode of our three-part mini-series focusing on three people with three autoimmune diseases in one family, 'Joel vs Arthritis' Twitch community member Lauren Gibbons shares her story of living with Ulcerative Colitis and how she believes childhood trauma and stress contributed to the development of her autoimmune condition.  She discusses her journey to diagnosis, her decision to undergo total colectomy surgery, and how she is managing her Ulcerative Colitis today - including by using peer support communities and gaming as escapism. Lauren also shares her insights on the connection between stress and autoimmune disease and offers advice to others struggling with similar challenges.  Discussion Topics: What is Ulcerative Colitis? Lauren's journey to diagnosis The decision to undergo total colectomy surgery Managing Ulcerative Colitis on a daily basis The connection between stress and autoimmune disease Advice for others living with autoimmune disease Using peer support communities as part of the management of long-term health conditions If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. @theless.eye.know Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis Join our Online Peer Support Community and Discord server here. All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.

In this second episode of our three-part mini-series focusing on three people with three autoimmune diseases in one family, we interview Matthew Gibbons, who lives with Crohn's Disease.  Crohn’s disease is a type of inflammatory bowel disease that causes digestive tract inflammation. Joel and Matthew talk about a variety of topics related to Crohn’s disease, including: - The challenges of living with Crohn’s disease, such as managing symptoms and finding the right treatment - The importance of staying active and athletic, even with a chronic illness - How to raise awareness about Crohn’s disease and other chronic illnesses - The interview is interspersed with Joel’s reflections on living with chronic pain and questions from viewers. Overall, the talk show is an upbeat and informative discussion about living with Crohn’s disease. Matthew is an inspiring example of someone who has been able to overcome the challenges of his illness and live a full and active life with suitable adaptions. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  YouTube: youtube.com/@VolumeMayVary Follow the HOST: Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.

In this first episode of a three-part mini-series focusing on three people with three autoimmune diseases in one family, we interview community member Kevin Gibbons, who has relapsing-remitting multiple sclerosis.  We discuss Kevin's experience with the condition, including his diagnosis, symptoms, and how he manages his life with MS. We also talk about the importance of patient advocacy, peer support and how sharing stories can help others. Here are some of the specific topics that are covered in the show: - Kevin's diagnosis with MS and how he came to terms with it - The different symptoms of MS that Kevin experiences - How Kevin manages his MS on a daily basis - The importance of staying positive and hopeful when living with a chronic illness - The importance of peer support and how being a part of a community that understands helps The show is an excellent resource for anyone interested in learning more about MS or chronic pain in general. It is also a source of hope and inspiration for people who are living with chronic conditions. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow the HOST: Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.

Petra Phoenix has been living with chronic pain for many years. She has seen many doctors, but she has never been given a specific diagnosis. This has made it difficult for her to access the help she needs. In this show, Petra shares her story of navigating chronic pain without a label. She talks about the challenges she has faced in accessing support, the resources she has found, and how she manages her pain. Petra's story is a reminder that chronic pain is a real and debilitating condition, even without a formal diagnosis. It is also a reminder that there is hope for those who are living with chronic pain. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Twitch: https://twitch.tv/petraphoenix Fediverse: @petraphoenix @mendeddrum.org Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.

Transverse myelitis (TM) is a neurological disorder characterised by spinal cord inflammation. This inflammation disrupts the normal transmission of nerve signals between the brain and the rest of the body, leading to various and sometimes life-threatening symptoms. Joining us to share their harrowing experience of Transverse Myelitis is someone who needs little introduction to regulars of our YouTube Channel; Chiara last joined us on World Psoriasis Day to talk about the fantastic work she does as a psoriasis patient advocate and founder of Psoriasis Indonesia. In this episode, however, we will discuss her terrifying experience of TM, the importance of her family as a support network and how she recently overcame paralysis from a flare.  A brilliant speaker and wonderful human being, this one is not to be missed. Have your tissues at the ready! Follow our GUEST:  Instagram: @chichilionel & @transversemyelitis.id Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter: https://twitter.com/joelvsarthritis Join our Online Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.

Our podcast turns three years old, and with it comes a makeover! In this short update, Joel explains the reason for the change and the exciting things to come. Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter: https://twitter.com/joelvsarthritis Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.

Dr Eleanor Chatburn, Clinical Psychologist, Lecturer, and Ambassador for The British Skin Foundation, joins us at the end of a marathon stream on World Psoriasis Day to discuss the mental health impact and burden of living with a chronic skin condition. We discuss ways of coping, alternative therapies, such as pain management and talking therapies, and the stigma people with skin conditions face. Plus, we get valuable insight into the psychology of living with a skin condition straight from the expert! Follow our GUEST:  Instagram: https://instagram.com/dreleanorchatburn Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter: https://twitter.com/joelvsarthritis Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.