The Joel Nelson Podcast

Recorded just before the EULAR Congress 2024 in Vienna, we are joined by Dr Simon Stones, a multiple award-winning patient advocate who is making his first appearance on the Chronic Pain Talk Show. In this insightful conversation, Simon shares his personal journey living with juvenile arthritis and his passion for improving patient experiences. We delve into the importance of patient involvement in research, the power of advocacy, and the impact of shared decision-making. Key topics covered in this episode: Simon's personal experience with juvenile arthritis The role of patient advocacy in healthcare The importance of shared decision-making between patients and healthcare providers The future of patient involvement in research Don't miss this inspiring conversation with Dr Simon Stones. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  Instagram: https://instagram.com/simonrstones Twitter/X: https://twitter.com/simonrstones  LinkedIn: https://www.linkedin.com/in/simonstones  Follow the HOST: Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis  Twitch: https://twitch.tv/joelvsarthritis  TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX  All Links: https://linktr.ee/Joelvsarthritis  Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

Psoriatic disease can cause pain and stiffness in the joints, making it challenging to stay active. However, exercise is crucial for managing the condition.  In this episode, we're joined by Craig Young, a sports fan living with psoriatic disease. Along with his diagnosis journey, Craig will share his tips and tricks for staying active and how he has adapted to his diagnosis to continue to enjoy sports despite the challenges of the disease. Little did we know that this conversation would lead to Craig joining Joel in founding Psoriatic Disease UK, a new patient-led charity in England and Wales that supports equally those affected by psoriatic disease, including psoriasis, psoriatic arthritis, and associated comorbidities. Proving that conversations really do change lives. Find out more here: https://psor.org. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

On this episode, we're incredibly excited to have Martin Stevens, a Research Fellow at the Aberdeen Centre for Arthritis and Musculoskeletal Health at the University of Aberdeen, join us. Hear us discuss his focus on patient and public involvement in research, why this is important, and what he is currently working on to improve patient outcomes. We talk about the iPRePaRe Study, which explores how patient research partner engagement is implemented in research, and his involvement in the QUICK study, which aims to help quantify chronic pain's impact on engagement in paid work by creating a means to measure it. These are vitally important topics and ones that regularly feature on the show when we share people's lived experiences with chronic illness, so we are grateful to get a researcher's insight into the ongoing work around these burdens of our disease(s). If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  Twitter/X: https://x.com/MartjStevens  Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

In the second of this two-part special, we are joined by Heather Christie, aka ArchaeoPlays - an archaeologist, content creator, and gamer. Heather delves into the past on their Twitch and YouTube channels, where they unearth hidden connections between video games and the ancient world. But their real-life adventure is even more intriguing as they navigate the challenges of living with multiple chronic illnesses, including endometriosis, adenomyosis, PCOS, IBS, interstitial cystitis, and chronic pain. In part two, we dive into why Heather plays games like Minecraft to distract themself and cope with the realities of living with multiple chronic illnesses and how they put their unique twist on it by linking it to their love of history. Listen to hear a novel and alternative way to manage your pain. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  YouTube: https://www.youtube.com/@archaeoplays Twitch: https://www.twitch.tv/archaeoplays Instagram: https://www.instagram.com/archaeoplays/ Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX. All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

In the first of this two-part special, we are joined by Heather Christie, aka ArchaeoPlays - an archaeologist, content creator, and gamer. Heather delves into the past on their Twitch and YouTube channels, where they unearth hidden connections between video games and the ancient world. But their real-life adventure is even more intriguing as they navigate the challenges of living with multiple chronic illnesses, including endometriosis, adenomyosis, PCOS, IBS, interstitial cystitis, and chronic pain. In two episodes recorded in front of a live audience on the Chronic Pain Club Talk Show, Heather first shares with us their story of chronic illness before, in part two, we dive into why they play games like Minecraft to distract and cope with the realities of living with these, and how they put their unique twist on it by linking it to their love of history. Check out this episode for our usual lived experience story, but come back for Part 2 to hear a novel and alternative way to manage your pain. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  YouTube: https://www.youtube.com/@archaeoplays Twitch: https://www.twitch.tv/archaeoplays Instagram: https://www.instagram.com/archaeoplays/ Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

For the 50th episode of the Joel Nelson Podcast, we are joined by the fabulous Ali DiGiacomo! Diagnosed with Juvenile Idiopathic Arthritis at 15 and then hit with severe Rheumatoid Arthritis at 22, Ali went from competitive swimming to giving up fitness entirely. But a decade later, she decided to fight back, one workout at a time. Whether you're struggling with chronic pain, looking for a fresh perspective on fitness, or simply in need of a dose of inspiration, Ali's RA story is a must-listen. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  Instagram: https://instagram.com/AnotherDayWithRA  TikTok: https://tiktok.com/@AnotherDayWithRA  Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

In this episode, we are joined by Chloë Hammond, a trailblazing clinical nurse who is breaking down barriers in the healthcare industry, and her amazing assistance dog, Ocho. Despite being a wheelchair user and an assistance dog owner after being diagnosed with a rare disease at the age of 15, Chloë thrives in her role as one of the few disabled nurses in the UK. In this episode, we'll explore Chloë's unique journey as a nurse with a disability, the importance of assistance dogs, how Ocho enhances Chloë's life, and the shockingly low representation of disabled individuals in the healthcare workforce and what needs to change. This engaging conversation will challenge your perspective, ignite inspiration, and leave you with valuable insights on disability inclusion and achieving dreams despite adversity. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  Instagram: https://instagram.com/wheelie.nurse.with.a.dog & https://instagram.com/watchochogrow   Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

On Day Three of the EULAR Congress in Vienna, we have a bumper episode for you as the podcast series becomes a talking point of the conference! In this episode, you will hear from: Raquel Vaz, Scientific Project Leader at IFPAPaul Studenic, Researcher and Rheumatologist at Medical University of ViennaRebecca Beesley, Volunteer at Juvenile Arthritis Research (JAR Project)Souzi Makri, Past Chair of EULAR PARE and Vice President of the Cyprus League for People with RheumatismKaty Antonopoulou, PARE Committee Member and President of Sjogren’s Europe You can find us all week at Booth O22. Join us and share your great work to be part of this special podcast series recorded live and on location in Vienna. For more information about the Good Care for PsA project: See here. Follow the HOST: Instagram: https://instagram.com/joelvsarthritis   Facebook: https://www.facebook.com/joelvsarthritis   Twitter/X: https://twitter.com/joelvsarthritis  Twitch: https://twitch.tv/joelvsarthritis  TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX  All Links: https://linktr.ee/Joelvsarthritis  DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

We are putting the patient voice into the EULAR conversation on Day 2 of the Congress as we are joined by Andreas Dam, developer of the RheumaBuddy app, and award-winning patient advocate and Chair-elect of the EULAR PARE Committee, Dr. Simon Stones. You can find us all week at Booth O22. Join us and share your great work to be part of this special podcast series recorded live and on location in Vienna. For more information about the Good Care for PsA project: See here. Follow the HOST: Instagram: https://instagram.com/joelvsarthritis   Facebook: https://www.facebook.com/joelvsarthritis   Twitter/X: https://twitter.com/joelvsarthritis  Twitch: https://twitch.tv/joelvsarthritis  TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX  All Links: https://linktr.ee/Joelvsarthritis  DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

As we record LIVE from EULAR 2024 on IFPA’s booth to raise awareness of psoriatic disease and the Good Care for PsA project, we speak to some brilliant guests as the Congress heats up. In this episode, you will hear from Ingvar Ingvarsson, Vice President of IFPA, Zoë Clark, Programme Manager at NASS, and Loreto Carmona, Rheumatologist, Epidemiologist, and EULAR Advocacy Chair. We talk about their hopes, plans, and work at Europe’s largest Rheumatology gathering. You can find us all week at Booth O22. Join us and share your great work to be part of this special podcast series recorded live and on location in Vienna. For more information about the Good Care for PsA project: See here. Follow the HOST: Instagram: https://instagram.com/joelvsarthritis   Facebook: https://www.facebook.com/joelvsarthritis   Twitter/X: https://twitter.com/joelvsarthritis  Twitch: https://twitch.tv/joelvsarthritis  TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX  All Links: https://linktr.ee/Joelvsarthritis  DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

Hidradenitis Suppurativa (HS) affects countless individuals, causing painful abscesses and scarring and impacting every aspect of life. Yet, it often remains shrouded in silence and misunderstanding. Join us for a powerful conversation with Barry McGrath, co-founder of HS Ireland, patient advocate, and former scientific clinical researcher, as we shine a light on this chronic condition. Barry discusses his own experience with HS and the challenges faced by people with the condition. He also provides advice for people who are newly diagnosed with Hidradenitis Suppurativa, including finding a good medical team, joining a patient support group, and advocating for themselves. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our awareness work. Follow our GUEST:  Website: http://hsireland.ie  Instagram: https://www.instagram.com/hs_ireland  Twitter: https://twitter.com/hsireland1   LinkedIn: https://www.linkedin.com/company/hs-ireland  YouTube: https://www.youtube.com/@HSIreland  Follow the HOST: Instagram: https://instagram.com/joelvsarthritis   Facebook: https://www.facebook.com/joelvsarthritis   Twitter/X: https://twitter.com/joelvsarthritis  Twitch: https://twitch.tv/joelvsarthritis  TikTok: https://www.tiktok.com/@joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX  All Links: https://linktr.ee/Joelvsarthritis  DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

For Lupus Awareness Month in May, we are joined by Melissa Chieza, an occupational therapist and mental health practitioner who has been living with Type 1 Diabetes and Lupus since she was a child. In the episode, Melissa discusses her experiences living with Lupus and Type 1 Diabetes since she was a child. She talks about the challenges of managing both conditions, including the emotional toll and the importance of self-care. Melissa also offers advice to others who are living with chronic illnesses, such as finding a support system, advocating for yourself, and learning to say no. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  Instagram: https://instagram.com/melcee97  Twitter/X: https://twitter.com/@mel_chieza  Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

In this brief unscripted update, we bring the exciting news that the Podcast is heading out this summer—and its first stop is the EULAR Congress in Vienna! Keep an ear out for a special mini-series recorded live at the conference in June and for more announcements about other stops and countries on the tour soon! If you enjoy this podcast, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this Podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.

Chery Crow has amassed tens of thousands of followers on social media through her informative and energetic videos. She hosts the hugely popular 'Arthritis Life' podcast and website, where she works towards her vision of a world where every patient feels empowered and equipped to participate in meaningful daily activities with more confidence. Cheryl also shares her Rheumatoid Arthritis story, what made her take to social media to share it, and why she founded the popular 'Rheum to Thrive' self-management and support programs. Finally, we touch upon Acceptance and Commitment Therapy and why acceptance is not a bad word. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  Instagram: https://www.instagram.com/arthritis_life_cheryl/  TikTok: https://www.tiktok.com/@arthritislife  Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

Please note that this show contains the following TRIGGER WARNINGS: Suicide, Grief, and Depression - please consider this when deciding how and where you listen. In this show, my long-time friend, Ben Veal, founder and director of Second Mountain Comms, shares his personal experiences with anxiety and depression and how he managed his mental health during the COVID-19 pandemic. We'll talk about the recent loss of his father and the impact it's had on Ben's self-identity journey. As fathers, we'll discuss the challenges of raising children today and how Ben is trying to improve his relationships and find purpose in his life, particularly with his work. Whether you're struggling with your mental health, navigating grief, or figuring out who you are and what you want from life, we hope you'll find something to relate to in this show. If anything in this episode affected you and you need support, you can find it local to you here: https://findahelpline.com/ If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  Instagram: https://instagram.com/secondmountaincomms TikTok: https://www.tiktok.com/@secondmountaincomms LinkedIn: https://www.linkedin.com/company/secondmountaincomms Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

On World Parkinson's Day, join us for a poignant and inspiring conversation with Dr. George Ackerman, a passionate advocate for Parkinson's disease and dementia awareness. Driven by the memory of his mother, Sharon, who bravely battled the disease, Dr. Ackerman has dedicated his life to raising awareness, furthering research, and offering hope to millions impacted by Parkinson's. Hear Dr. Ackerman share his mother's journey with Parkinson's, the profound impact she had on his life, and his work, including his organisation, "Together for Sharon," and how it's making a difference in the lives of patients and their families. This is more than just a talk show; it's a platform for inspiration, action, and hope. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  Instagram: https://www.instagram.com/togetherforsharon/ YouTube: https://www.youtube.com/channel/UCIeBLOelhaLQNvgeNMzu-5g Twitter/X: https://twitter.com/togetherforsha1  Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

Osteoarthritis (OA) doesn't discriminate. It can affect people of all ages, including young adults and even children. In this episode, we talk to Rebecca Kudyk, who was diagnosed with severe Osteoarthritis at the age of 25. Rebecca shares her story of living with OA and how she has managed to not only maintain a high-profile job and young family, but thrive. In this episode, you will learn:  How OA can affect people of all agesThe challenges of living with OA and other comorbiditiesHow to stay positive and find ways to manage pain, fatigue and familyRebecca's tips for managing OA and maintaining a high-functioning lifestyle If you or someone you know is living with OA, this episode is for you. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  Instagram: https://instagram.com/chronically_bex Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

In this episode, we ask what role gender plays in delays to diagnosis. We are incredibly fortunate to be joined by Professor Yeliz Prior, Professor of Clinical Rehabilitation at the University of Salford, who lives with axial spondyloarthritis (axSpA) and osteoarthritis. Alongside exploring her personal lived experience journey and the great work she does as a prominent figure in the Rheumatology community, we discuss diagnostic delay and how gender and different patterns of clinical presentation across them can impact this. Listen now to what was, at the time of recording, our most-watched live show ever - and for good reason! If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  Twitter: @ProfYelizPrior Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon by Gideon Murray

Ahead of Rare Disease Day, we welcome Rachel Rimmer and Mark Telkman from Rare Autoinflammatory Conditions Community UK (RACC-UK) to illuminate the often-overlooked world of these chronic illnesses and how they differ from autoimmune diseases. RACC-UK is a UK-based charity supporting individuals living with rare autoinflammatory conditions, their families, and carers. They work tirelessly to improve their lives through information, support, advocacy, working alongside healthcare professionals and informing policy. Discover how RACC-UK creates a lifeline for patients facing isolation and empowers them to become active participants in their healthcare. Learn about their valuable resources and initiatives that make a real difference in the lives of those living with autoinflammatory conditions. Join us as Rachel shares her poignant diagnosis journey in the search for answers. Despite symptoms from birth, it took over a decade for her to be diagnosed with Mevalonate Kinase Deficiency (MKD). We learn about this experience and how it led to advocacy and becoming the Director of RACC-UK. This conversation is more than just a medical exploration; it's a call to action. We'll discuss the challenges of raising awareness, receiving a timely diagnosis, and ensuring a better future for all affected by these complex conditions. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow our GUEST:  Instagram: https://instagram.com/@racc_uk Website: https://raccuk.com/ Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.

We are incredibly fortunate to be joined by not only Ass. Prof. Dr. Rachel Sommer, Head of People-Centered Health Care Research and Psychodermatology at University Medical Center Hamburg-Eppendorf, but a surprise guest in leading Dermatologist Prof. Dr. Matthias Augustin, Director of the Institute for Health Services Research in Dermatology and Nursing of the same institution who discuss the vitally important work they both do in people-centered healthcare. Person-centered healthcare (PCHC) is a holistic approach to healthcare that puts the patient's needs and preferences at the centre of care.  In PCHC, the patient is seen as an active partner in their own healthcare, involved in all aspects of their care, from setting goals to making decisions about their treatment. This approach has been shown to provide improved patient outcomes and quality of life. We will explore the relevance of PCHC, especially in the context of mental health and dermatological conditions, discuss the benefits, how to implement it in practice, and current projects related to PCHC in dermatology. If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. Follow the HOST: Instagram: https://instagram.com/joelvsarthritis  Facebook: https://www.facebook.com/joelvsarthritis  Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.